A mum has slammed health bosses for giving out “nose and boob jobs”on the NHS while she has to pay for her disabled daughter's treatment.
Vicky Hadley, from Louth, pays privately for her eight-year-daughter Leonie Hadley-Wilkinson to undergo Selective Dorsal Rhizotomy (SDR).
Leonie was born with quadriplegic cerebral palsy after a “traumatic delivery”, nearly three weeks premature and is living in constant pain, Grimsby Live reported.
Her condition is so severe that SDR is not currently provided by the NHS, meaning her family must continuously raise money towards her healthcare.
Her mum says it makes her “despair” when the NHS funds “nose and boob jobs” when her daughter – and other children like Leonie – are living in pain.
Vicky said: “We want to raise awareness of the fact that people with Leonie’s condition aren’t receiving any financial support.
“It does make me despair when I see NHS money wasted on people having nose jobs and boob jobs because they’re depressed with how they look, and yet my daughter is living in pain and is desperate for an operation.”
Leonie was entered into the ITV National Diversity Awards – and her story has been inspiring people across England.
Born in 2012, Leonie spent three months in a neonatal hospital before she was diagnosed with quadriplegia CP one year later.
Quadriplegia CP is a specific type of spastic cerebral palsy which makes controlling movements in the arms and legs difficult.
Those who have this form of cerebral palsy will not have paralysis of the muscles, but rather jerking motions that come from stiffness within all four limbs, according to Cerebral Palsy Group.
Leonie said: “I was a poorly baby. I couldn’t do what other babies could do like roll, sit up or even hold my bottle.
“This came as a shock to my family but my mummy made my upper body stronger by home physio
“I started to feed myself without refluxing and then I learned to talk.
“My legs had very high spasticity and especially my right arm. As I got older, my limbs became more painful and more difficult to move.
“When I had physiotherapy, it used to hurt so much that it used to upset my mummy.”
Leonie underwent a Selective Dorsal Rhizotomy (SDR) in 2019 to reduce muscle stiffness. It is hoped this will eventually enable her to walk.
She said: “My mummy heard about an SDR operation in the UK for children with cerebral palsy.
“We had to fundraise for the operation and we raised the money for this, even though it was available for children with lower levels of cerebral palsy on the NHS.
“I had the SDR at the Queen’s Medical Centre in Nottingham. We also had to raise money for the crucial physio and equipment.”
One year on and Leonie can now sit unaided and can sit to stand holding onto parallel bars.
Vicky told Lincolnshire Live: “Before the operation, she could only lie on the floor and move her head. Straight after the operation, she could move her legs, she could even sit up and occasionally crawl.
"It's extremely stressful as I'm constantly worrying about the money running out and having to constantly fundraise.
"The monthly cost for Leonie's physiotherapy is £1,000. Her operation costs thousands and she's due to have another one.
"We've had to buy all her equipment and currently she needs a new bench to help her sit up.
"I'm scared the money will run out and she'll be left in limbo, which would be devastating because she's come so far."
After sharing her story on ITV National Diversity Awards, Leonie received a nomination for Positive Role Model of the Year.
She was nominated by schoolboy Peter from south England, who dedicated his school project to Leonie after reading about her bravery.
Vicky added: "When I heard about the nomination I burst into tears. It means so much that her bravery has been recognised. It's like she's done all this before, she just gets on with it.
"I urge people to please vote for Leonie. She's come through so much and will continue to need the support. She's fought so hard and I hope that if she wins, we can shine a light on this condition."
Leonie added: “My life has changed and that’s because of peoples’ kindness and support to help me to have a better life without the pain of spasticity.
“So please vote for me or if you can, spare a small donation to keep my life changing physiotherapy funded.
“We still have to raise money for private physio as this isn’t available for me on the NHS either.
“I’ve come so far in a year since my SDR operation from only being able to move around on the floor using my head to now being able to stand tall.
“I have loads more mobility now but my dream is to be able to walk one day.”
Vote for Leonie for Positive Role Model of the Year here .
To support Leonie and her family with a cash donation, visit their on-going fundraising page .
Mirror Online has contacted NHS England for a comment.
Source: Read Full Article